Prognosis with Myelofibrosis

Your individual situation and health history, as well as the ways you respond to treatment, can all affect your prognosis (the predicted outcome of the disease). MF affects people differently, and an individual’s prognosis may vary depending on a number of factors, such as age, blood count and symptoms.

 

Life expectancy varies from person to person but it may be reduced. Your haematologist will be able to provide you with an accurate picture for your individual situation.

 

“It can take time to adjust to the news that your condition could reduce your life expectancy,” says Dr Rachel Davis, Health Psychology Specialist. “But with good monitoring and regular updates of your treatment plan, you and your haematologist can work together to manage your symptoms in the best way possible.”

 

In the 10 years following diagnosis about 20% of MF cases develop into acute myeloid leukaemia, a blood and bone marrow cancer that can progress rapidly – your haematologist will be monitoring you to check for changes in your condition.

 

Bear in mind when you’re reading up about the condition, though, that in some patients the disease may remain stable or gradually progress over time. This means that many of the symptoms and outcomes you read about may not happen for you. Try using the MPN10 symptom tracker. If you have any concerns talk to your haematologist.

 

Prognosis can be a difficult but very important area to discuss with patients and is, of course, always individual for each patient and individual to the circumstance and stage of disease that the patient might have.

– Professor Claire Harrison