Prognosis with Essential Thrombocythaemia

Your individual situation and health history, as well as the ways you respond to treatment, can all affect your prognosis (the predicted outcome of the disease). Your haematologist will be able to provide you with a more accurate picture.

In general, patients with ET without severe clotting or bleeding complications have an excellent chance of living out a near-normal life span if properly monitored and treated as necessary.

In some patients the disease may remain stable or gradually progress over time. This means that you may never experience many of the symptoms and outcomes that you read about – or if you do, it may not be for many years. Many people with ET live normal lives for years at a time without experiencing complications.

In a minority of cases, ET can progress into myelofibrosis (MF) or acute myeloid leukaemia (AML). If you have any concerns, talk to your haematologist.

There are risk factors which the patient can play an active role in reducing;
by maintaining a normal health with activity and a good diet,
and stopping smoking where possible.

– Professor Claire Harrison